검색어 : 통합검색[Amyotrophic lateral sclerosis --Patients --Family relationships.]
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- End-of-life care after the legal introduction of advance directives: A qualitative study involving healthcare professionals and family caregivers of patients with amyotrophic lateral sclerosis
- Cipolletta, Sabrina; Reggiani, Margherita; Department of General Psychology, University of Padua, Padua, Italy; Department of General Psychology, University of Padua, Padua, Italy; (Palliative medicine, v.35, 2021, pp.209-218)
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- Going inside the relationship between caregiver and care‐receiver with Amyotrophic Lateral Sclerosis in Italy, a Grounded Theory study
- Bassola, Barbara; Cilluffo, Silvia; Lusignani, Maura; School of Nursing, University of Milan, Azienda Socio Sanitaria Territoriale Grande Ospedale Metropolitano Niguarda, Milan, Italy; Azienda Socio Sanitaria Territoriale Grande Ospedale Metropolitano Niguarda, Milan, Italy; School of Nursing, University of Milan, Azienda Socio Sanitaria Territoriale Grande Ospedale Metropolitano Niguarda, Milan, Italy; (Health & social care in the community, v.29, 2021, pp.1083-1090)
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- Experiences with using mechanical in-exsufflation in amyotrophic lateral sclerosis
- Siewers, Vibeke; Holmø y, Trygve; Frich, Jan C.; ; (European journal of physiotherapy, v.15, 2013, pp.201-207)
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- Parental and child adjustment to amyotrophic lateral sclerosis: transformations, struggles and needs
- Sommers-Spijkerman, Marion; Rave, Neele; Kruitwagen-van Reenen, Esther; Visser-Meily, Johanna M. A.; Kavanaugh, Melinda S.; Beelen, Anita; Department of Rehabilitation, Physical Therapy Science and Sports, Brain Center, University Medical Center Utrecht, Utrecht, The Netherlands; Department of Rehabilitation, Physical Therapy Science and Sports, Brain Center, University Medical Center Utrecht, Utrecht, The Netherlands; Department of Rehabilitation, Physical Therapy Science and Sports, Brain Center, University Medical Center Utrecht, Utrecht, The Netherlands; Department of Rehabilitation, Physical Therapy Science and Sports, Brain Center, University Medical Center Utrecht, Utrecht, The Netherlands; Helen Bader School of Social Welfare, University of Wisconsin-Milwaukee, Milwaukee, WI USA; Department of Rehabilitation, Physical Therapy Science and Sports, Brain Center, University Medical Center Utrecht, Utrecht, The Netherlands; (BMC psychology, v.10, 2022, pp.72)
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- FIG4 variants in central European patients with amyotrophic lateral sclerosis: a whole-exome and targeted sequencing study
- Osmanovic, Alma; Rangnau, Isolde; Kosfeld, Anne; Abdulla, Susanne; Janssen, Claas; Auber, Bernd; Raab, Peter; Preller, Matthias; Petri, Susanne; Weber, Ruthild G; Department of Human Genetics, Hannover Medical School, Hannover, Germany; Department of Neurology, Hannover Medical School, Hannover, Germany; Department of Human Genetics, Hannover Medical School, Hannover, Germany; Department of Neurology, Hannover Medical School, Hannover, Germany; Department of Human Genetics, Hannover Medical School, Hannover, Germany; Department of Neurology, Hannover Medical School, Hannover, Germany; Department of Neurology, University Hospital Magdeburg, Magdeburg, Germany; Department of Neurology, Hannover Medical School, Hannover, Germany; Department of Human Genetics, Hannover Medical School, Hannover, Germany; Department of Neuroradiology, Hannover Medical School, Hannover, Germany; Institute for Biophysical Chemistry, Hannover Medical School, Hannover, Germany; Center for Structural Systems Biology, German Electron Synchrotron (DESY), Hamburg, Germany; Department of Neurology, Hannover Medical School, Hannover, Germany; Department of Human Ge; (European journal of human genetics : EJHG, v.25, 2017, pp.324-331)
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- Factors that facilitate and hinder the manageability of living with amyotrophic lateral sclerosis in both patients and next of kin
- Olsson Ozanne, Anneli; Graneheim, Ulla H; Persson, Lennart; Strang, Susann; ; (Journal of clinical nursing, v.21, 2012, pp.1364-1373)
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- Living through the end: The phenomenon of dying at home
- Solomon, Diane N.; Hansen, Lissi; ; (Palliative & supportive care, v.13, 2015, pp.125-134)
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- What are the roles of carers in decision-making for amyotrophic lateral sclerosis multidisciplinary care?
- Hogden, Anne; Greenfield, David; Nugus, Peter; Kiernan, Matthew C; Centre for Clinical Governance Research, Australian Institute of Health Innovation, University of New South Wales; Centre for Clinical Governance Research, Australian Institute of Health Innovation, University of New South Wales; Centre for Clinical Governance Research, Australian Institute of Health Innovation, University of New South Wales; Prince of Wales Clinical School, University of New South Wales and Neuroscience Research Australia, Sydney, NSW, Australia; (Patient preference and adherence, v.7, 2013, pp.171-181)
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- One third of physicians discuss exit strategies with patients with amyotrophic lateral sclerosis: Results from nationwide surveys among German and Polish neurologists
- Barć , Krzysztof; Finsel, Julia; Helczyk, Olga; Baader, Susanne; Aho‐ Ö zhan, Helena; Ludolph, Albert C.; Lulé , Dorothé e; Kuź ma‐ Kozakiewicz, Magdalena; Department of Neurology University Clinical Centre of Medical University of Warsaw Warsaw Poland; Department of Neurology University of Ulm Ulm Germany; Department of Neurology University of Ulm Ulm Germany; Department of Neurology University of Ulm Ulm Germany; Department of Neurology University of Ulm Ulm Germany; Department of Neurology University of Ulm Ulm Germany; Department of Neurology University of Ulm Ulm Germany; Department of Neurology Medical University of Warsaw Warsaw Poland; (Brain and behavior, v.14, 2024, pp.e3243)
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- Choroid plexus enlargement in amyotrophic lateral sclerosis patients and its correlation with clinical disability and blood-CSF barrier permeability
- Dai, Tingjun; Lou, Jianwei; Kong, Deyuan; Li, Jinyu; Ren, Qingguo; Chen, Yujing; Sun, Sujuan; Yun, Yan; Sun, Xiaohan; Yang, Yiru; Shao, Kai; Li, Wei; Zhao, Yuying; Meng, Xiangshui; Yan, Chuanzhu; Lin, Pengfei; Liu, Shuangwu; ; (Fluids and barriers of the CNS, v.21, 2024, pp.36)
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